No One Told You Life Was Gonna Be This Way

Here we are again, curled up into a ball and typing with my thumbs because I’m in too much pain to sit at the computer. I guess downloading the Word Press app was worthwhile after all, I’m using it far more than I anticipated. It’s amazing how many spoons it takes to sit at the computer and type but I digress. 

I’ve been experiencing a bit of a flare up this past week so today I went into the hospital infusion center for IV fluids. The last time I saw my GI doctor we decided that this would be the plan; as soon as I start feeling more poorly than usual he will bring me in for fluids to hopefully stave off an acute episode. He pumped me full of fluids and now I’ve blown up like the Stay Puffed Marshmallow Man but fingers crossed I can ride this out at home. 

I’m running pretty close to empty but I’m committed to my 5-3-1 challenge and used my time at the hospital today to meditate. I found this to be very helpful while in the midst of the hustle and bustle of the infusion center and today I used a guided meditation called Beyond Pain from Meditation Oasis by Mary and Richard Maddux. This was a really great one for my personal circumstances and I highly recommend it for my fellow spoonies. 

My random act of kindness was for the nurse who cared for me while at the hospital. I left an anonymous comment for her supervisor praising her kindness and skills as well as those of the other nurses and staff I dealt with today. They are all so fabulous and I hope that getting some positive feedback brightens their day and helps them realize just how appreciated and important they are in their patients’ lives. 

Today I am grateful for:

  • Netflix; being able to binge watch episodes of FRIENDS really helped to pass the time today
  • My girlfriends who texted with me and kept me smiling while dealing with this not so pleasant illness
  • Husby, he keeps me going

What is keeping you going today? 

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